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But there is a dedicated and resilient community that is passionate about elevating visibility around rare diseases. By connecting the Wilson disease community to other inspiring voices and informative resources, you can become more informed, well-connected and a better advocate for your own health or your loved one’s health.
The organizations below provide education on Wilson disease, information on associated conditions and avenues to find support for your disease.
The WDA provides support and hope to people impacted by Wilson disease worldwide so that they may lead the best quality of life possible.
NORD is a nonprofit organization aiming to provide support for individuals with rare diseases. It features extensive resources on Wilson disease, such as signs and symptoms, causes, related disorders, standard therapies, supporting organizations and more.
ALF is a nonprofit organization that promotes liver health and disease prevention. It provides information on Wilson disease, patient stories, questions to ask your healthcare provider and the overall progression of liver disease.
NIDDK is an organization within the National Institute of Health, which works to research treatments for diseases that are chronic, costly and consequential for patients and families. NIDDK offers detailed resources and materials about Wilson disease diet and nutrition, treatment, clinical trials and related research.
NAMI is an advocacy group with the goal of educating and providing support groups for people with depression, anxiety and other mental illnesses.
NIMH is the lead federal agency for research on mental health disorders. It provides resources and information related to psychiatric symptoms Wilson disease patients may experience.
WDA is a volunteer organization striving to promote the well-being of patients with Wilson disease and their families and friends.
NORD is a nonprofit organization aiming to provide support for individuals with rare diseases. It features extensive resources on Wilson disease, such as signs and symptoms, causes, related disorders, standard therapies, supporting organizations and more.
ALF is a nonprofit organization that promotes liver health and disease prevention. This source provides information on Wilson disease, patient stories, questions to ask your doctor and the overall progression of liver disease.
NIDDK is an organization within the National Institute of Health, which works to research treatments for diseases that are chronic, costly and consequential for patients and families. NIDDK offers detailed resources and materials about Wilson disease diet and nutrition, treatment, clinical trials and related research.
NAMI is an advocacy group with the goal of educating and providing support groups for people with depression, anxiety and other mental illnesses.
NIMH is the lead federal agency for research on mental health disorders.
WDA is a volunteer organization striving to promote the well-being of patients with Wilson disease and their families and friends.
NORD is a nonprofit organization aiming to provide support for individuals with rare diseases. It features extensive resources on Wilson disease, such as signs and symptoms, causes, related disorders, standard therapies, supporting organizations and more.
AASLD is the leading organization of scientists and healthcare professionals committed to preventing and curing liver disease.
ALF is a nonprofit organization that promotes liver health and disease prevention. This source provides information on Wilson disease, patient stories, questions to ask your doctor and the overall progression of liver disease.
NIDDK is an organization within the National Institute of Health, which works to research treatments for diseases that are chronic, costly and consequential for patients and families. NIDDK offers detailed resources and materials about Wilson disease diet and nutrition, treatment, clinical trials and related research.
NAMI is an advocacy group with the goal of educating and providing support groups for people with depression, anxiety and other mental illnesses.
This is an online tool to help find the right mental health professional for your needs.
This is a resource to educate patients and families on topics related to mental health.
NIMH is the lead federal agency for research on mental health disorders.
This is an online support group for families or patients to connect with other people experiencing Wilson disease.
NAMI is an advocacy group with the goal of educating and providing support groups for people with depression, anxiety and other mental illnesses.
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Connect with the Wilson disease community and participate in lively discussions.
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Explore our resources to learn all you can, then see your healthcare provider to help take control of a journey toward a healthier you.
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