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As someone living with or caring for someone with Wilson disease, you understand the need for strength and resilience in overcoming the daily challenges you face.
You are experiencing the impacts of a rare disease and that takes determination.
Each Wilson disease journey may be different, but the aim is the same – to live your best healthy life while managing a chronic condition. Through increased access to information and resources, along with support from a strong community, you can take control of your health management. Now is the time for the Wilson disease community to find hope on your health management paths as you ask the world to Cu See Me.
But being strong doesn’t mean living with Wilson disease isn’t tough. From receiving a diagnosis to managing an effective treatment plan, navigating Wilson disease can be difficult for both patients and caregivers.
This site contains a variety of helpful resources designed to help you advocate for your own health as you think about your journey and discover your path forward.
Reimagine your journey today.
Explore our resources to learn all you can, then see your healthcare provider to help take control of a journey toward a healthier you.
Explore ResourcesWilson disease is a rare and progressive genetic condition in which the body has weakened ability to remove excess copper. Copper is an important mineral required for many of the body's essential functions.
Some may not have any Wilson disease symptoms; others have rearranged their whole lives because of it. Some have been living with Wilson disease for decades; others only days.
Sometimes it might feel lonely to have Wilson disease or to be a caregiver. But there is a dedicated and resilient community that is passionate about elevating visibility around the needs of this rare condition.
For many people in the Wilson disease community, the challenges of a lengthy diagnosis journey are extended and impacted by potentially complicated management plans. Resources are available that may help you communicate with your doctor.
